Rare diseases



Proteus Syndrome Foundation (UK) proteus syndrome
        PSF UK - Proteus Syndrome Foundation UK

Eurordis -- European Organization for Rare Diseases
        Eurordis - European Organization for Rare Diseases

Rare Diseases Clinical Research Network epi
        Rare Diseases Clinical Research Network

NIH's Genetic and Rare Diseases Information Center info html resources
        Genetic and Rare Diseases Information Center - Office of Rare Diseases

National Organization for Rare Disorders
        NORD - National Organization for Rare Disorders, Inc.

Committee for Orphan Medicinal Products (COMP) of the European Agency for the Evaluation of Medicinal Products (EMEA).
        Committee for Orphan Medicinal Products (COMP)

Orphan medicinal products
        

Orphanet: database of rare diseases
        Orphanet

DG RESEARCH, TECHNOLOGICAL DEVELOPMENT AND DEMONSTRATION 6TH FRAMEWORK PROGRAMME (2002-2006): Life sciences, genomics and biotechnology for health europa research
        

DG SANCO Task Force on Rare Diseases; Two day conference on Rare Diseases 2005 europa health
        EUROPA - Public Health - Threats to health - non-communicable diseases - Rare diseases - Events

Key documents europa health
        EUROPA - Public Health - Health promotion programme - Key documents

List of projects funded by year europa health
        EUROPA - Public Health - Funded projects - Rare diseases

EUROCAT: European network of population based registries for congenital anomalies ulster
        Welcome to EUROCAT

Learning About Severe Combined Immunodeficiency (SCID) NIH
        genome.gov | Learning About Severe Combined Immunodeficiency (SCID)

Don't hesitate to contact stuff on http://www.froola.com

scid.net SCID self-help support group and resource guide
        The SCID Homepage

Thrombotic thrombocytopenic purpura diseases facts
        Thrombotic thrombocytopenic purpura (TTP)

eMedicine - Thrombocytopenic purpura
        eMedicine - Thrombocytopenic Purpura : Article by D Symonette, MD, MPH, FACEP

MedlinePlus Medical Encyclopedia: Thrombotic thrombocytopenic purpura article
        MedlinePlus Medical Encyclopedia: Thrombotic thrombocytopenic purpura

GeneReviews: Werner syndrome
        GeneReviews: Werner Syndrome

WRN at the GenAge database.
        The WRN gene and its putative association with human ageing

Segmental Progeria aging
        MECHANISMS OF AGING

DNA Repair users ultranet
        DNA Repair

Immune Deficiency Foundation - Chapter VII, "The Wiskott-Aldrich Syndrome"
        IDF - Patient and Family Handbook For The Primary Immune Deficiency Diseases, Third Edition

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It uses material from the Wikipedia articles : Proteus syndrome , Rare disease , Severe combined immunodeficiency , Thrombotic thrombocytopenic purpura , Werner syndrome , Wiskott-Aldrich syndrome , .
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